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INSIGHTS Study on Sickle Cell Disease and Leg Ulcers — The purpose of this study is to 1) understand the role of the skin microbiome in formation and delay in the healing of leg ulcers in sickle cell disease, 2) understand genomic, environmental...

The Haplo SCD Consortium offers Parent-To-Child (haplo) bone marrow transplants for sickle cell disease (SCD). The consortium offers a multi-institutional phase II clinical trial that uses half-matched family donors to try and cure sickle cell disease in children ages 2-20. Led...

Sickle Cell Research Registry — Researchers are currently collecting information about the care sickle cell disease patients receive, the medications they are prescribed, as well as the complications they experience. People with sickle cell disease, newborn to age 21, may...

Governor Corbett’s proposed budget 2011/2012 includes a strategy to collapse several medical programs including sickle cell disease (SCD) in to one line item and to cut this line item by 45%.  The result of such a cut will be devastating to this vulnerable population. It is estimated that more...

Thousands of families carry the gene that causes sickle cell disease and don't know it — even though almost every newborn today is tested for what's called "sickle cell trait," and starting this summer more college athletes are getting tested, too. Spurred in part by rare but tragic collapses of...

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