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They often turn up in the emergency room in severe pain, pleading for relief. A drug that can help reduce their flare-ups is readily available — yet too rarely used.

The patients, many of them children, have sickle cell disease, a...

September is Sickle Cell Disease Awareness Month!

Join the Children’s Sickle Cell Foundation in recognizing the month with the inaugural  Living Well with Sickle Cell® Family Research Summit on

Friday,...

A Study of Hematopoietic Stem Cell Therapy for Young Adults with Severe Sickle Cell Disease 

Sickle Cell Transplantation to Prevent Disease Exacerbation (STRIDE) is a study focused on...

Children's Sickle Cell Foundation has been selected as a dreamer at Dream Cream Ice Cream for the month of September. As you know, September is National Sickle Cell Awareness Month and we are thrilled to be able to spread...

INSIGHTS Study on Sickle Cell Disease and Leg Ulcers — The purpose of this study is to 1) understand the role of the skin microbiome in formation and delay in the healing of leg ulcers in sickle cell disease, 2) understand genomic, environmental...

The Haplo SCD Consortium offers Parent-To-Child (haplo) bone marrow transplants for sickle cell disease (SCD). The consortium offers a multi-institutional phase II clinical trial that uses half-matched family donors to try and cure sickle cell disease in children ages 2-20. Led...

The Family Support Program is designed to actively provide services to families with children suffering from Sickle Cell Disease (SCD). There are many programs to choose from.

Sickle Cell Research Registry — Researchers are currently collecting information about the care sickle cell disease patients receive, the medications they are prescribed, as well as the complications they experience. People with sickle cell disease, newborn to age 21, may...

Ryan Clark knows what it’s like to have the sickle cell trait and he knows it’s a trait that can be passed along, and that is why he helped out the Children’s Sickle Cell Foundation.

Governor Corbett’s proposed budget 2011/2012 includes a strategy to collapse several medical programs including sickle cell disease (SCD) in to one line item and to cut this line item by 45%.  The result of such a cut will be devastating to this vulnerable population. It is estimated that more...

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