From Patient to Leader: Ways to Join Sickle Cell Research & Advocacy
Many young adults with Sickle Cell Disease (SCD) grow up going to doctor visits, taking medicine, and managing pain. For many years, doctors and parents made most of the decisions. But adulthood brings change. You are not just a patient anymore. You are an expert in your own experience. You understand your challenges and strengths […]
Power of Awareness: Communities Uniting to Fight Sickle Cell Disorders
Sickle Cell Disease (SCD) is more than just a blood condition that runs in families. Millions of people and families suffer from this disease every day. The sickle-shaped red blood cells obstruct blood flow, which causes pain, fatigued, and shortens the victim’s life. Medical treatment keeps getting better, but being attentive is still very important. […]
