The Living Well with Sickle Cell Walk
The Living Well with Sickle Cell Walk will be held at Kenny-wood Park in the morning of June 12, 2016. We hope that you and your family and friends will help support this event to raise awareness about sickle cell disease. Anyone raising at least $50 will receive a FREE FunDay Pass. Register today...
National Patient Registry –
The Sickle Cell Disease Association of America, Inc. National Headquarters (SCDAA) is proud to announce that it is the recipient of the Sickle Cell Disease Newborn Screening Project (SCDNBSP) cooperative agreement awarded by the Health Resources and Services Administration (HRSA). The Sickle Cell Disease Newborn Screening Project is a 2-year collaborative. CSCF is one of ten (Co-Lead) community-based organizations that were chosen specifically for their strength in leadership and partnership in 5 of the HRSA designated regions across the nation. One of the major components of the national effort to enhance the overall quality of life for patients living with sickle cell disease is the new Get Connected, patient-powered registry. Read more...
Living Well with Sickle Cell® Disease and Trait Community is Launched!
The purpose of this web based community is give all persons with sickle cell disease, parents and families, community advocates, advocacy groups, physicians, social workers and others a social media tool to interact in sickle cell disease to provide tools for collaboration and to strengthen the VOICE of the Sickle Cell Community. The website is www.