Living Well With Sickle Cell®

How You Can Help

No matter where you are, you can be involved with the effort to help find a cure for sickle cell disease.

DONATE

Giving financially  helps support our families to help them through challenges caused by SCD. 

VOLUNTEER

We are always looking for those with big hearts and willing hands. Find out how you can get involved.

FUNDRAISE

Start a Facebook birthday fundraiser online or host a fundraiser with your friends or co-workers. 

DONATE BLOOD

You can donate or organize a blood drive at your local church, school, business, or community center.

What is Sickle Cell?

Sickle cell disease is a group of inherited red blood cell disorders. Normal red blood cells are round like doughnuts, with the hole filled in, they are soft and slippery so they move through small blood vessels easily in the body to deliver oxygen. Sickled red blood cells don’t move through the body as easily because they become hard and sticky.  When the sickled cells go through the small blood vessels, they clog the blood flow and may break apart. This can cause pain, tissue damage and a low blood count, or anemia.

Learn about SICKLE OPTIONS

Over the last two decades there have been more treatments available for persons living with SCD.  There is an online decision aid availalble to help you learn about sickle cell disease, the available treatments and get help making the decision that is right for you and your family.

New parent handbook

EXCITING NEWS! 

We have partnered with Hilton Publishing to produce Living Well with Sickle Cell®, The Parent Handbook as a resource for parents and caregivers.

Written in a friendly, understandable method and using color coded tabs for easy navigation, the comprehensive Parent Handbook contains critical information and resources for parents coping with this painful disease, including:

  • SCD: What to know and what to do
  • About your baby
  • People who care for your child
  • When to call the doctor and when to go to the ER
  • Information for teachers and childcare providers
  • Frequently asked questions about SCD
  • Record keeping & resources

Join our mailing list & keep in touch

It takes a village to raise a healthy child

You are not alone. We’re here with programs and services to  help you when you need it.

RECENT NEWS & EVENTS

CSCF Living Well with Sickle Cell® Mobile App – Promo 3

This is a promotional video about the CSCF Living Well with Sickle Cell® Mobile App for managing sickle cell disease from appointments, medications, hydration intake, and moods. The LWSC®App has a lot of information, integrated text messaging, and weather alerts. For more information visit www.cscfkids.org or @cscfkids_

read more

CSCF Living Well with Sickle Cell® Mobile App – Promo 1

This is a promotional video about the CSCF Living Well with Sickle Cell® Mobile App for managing sickle cell disease from appointments, medications, hydration intake, and moods. The LWSC®App has a lot of information, integrated text messaging, and weather alerts. For more information visit www.cscfkids.org @cscfkids_

read more

CSCF Living Well with Sickle Cell® Mobile App – Promo 2

This is a promotional video about the CSCF Living Well with Sickle Cell® Mobile App for managing sickle cell disease from appointments, medications, hydration intake, and moods. The LWSC®App has a lot of information, integrated text messaging, and weather alerts. For more information visit www.cscfkids.org @cscfkids_

read more
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