National Patient Registry –

The Sickle Cell Disease Association of America, Inc. National Headquarters (SCDAA) is proud to announce that it is the recipient of the Sickle Cell Disease Newborn Screening Project (SCDNBSP) cooperative agreement awarded by the Health Resources and Services Administration (HRSA). The Sickle Cell Disease Newborn Screening Project is a 2-year collaborative. CSCF is one of ten (Co-Lead) community-based organizations that were chosen specifically for their strength in leadership and partnership in 5 of the HRSA designated regions across the nation. One of the major components of the national effort to enhance the overall quality of life for patients living with sickle cell disease is the new Get Connected, patient-powered registry. Read more...


Living Well with Sickle Cell® Disease and Trait Community is Launched! 

The purpose of this web based community is give all persons with sickle cell disease, parents and families, community advocates, advocacy groups, physicians, social workers and others a social media tool to interact in sickle cell disease to provide tools for collaboration and to strengthen the VOICE of the Sickle Cell Community. The website is www.livingwellwithsicklecell.org  We hope you'll join and give your feedback! 
Join NOW! 


Welcome to Our New Staff Members

Join us in welcoming our new Care Coordinator, Eartha Sewell, Community Health Worker, Tasha Alexander-Hooks and Data Coordinator, Brooke Hornak. We are excited to have them as we expand our programs and services throughout the Western Pennsylvania and West Virginia areas of the North East Region as a part of the HRSA Sickle Cell Newborn Screening Project with the Sickle Cell Disease Association of America.